Lymphoma Survival

 Follicular lymphoma. The Four Pillar program: epigenetics, lifestyle, diet, exercise, stress/sleep, regression, remission, latest treatments, transformation

*****

Overcoming Follicular Lymphoma

It’s About Making the Right Choices Along the Way

 

This site is dedicated to proactive follicular lymphoma survivors and caregivers seeking the best possible information and guidance toward achieving results beyond the norm.

Both information on the confusing nature of follicular lymphoma AND guidance based in the latest science to take advantage of things we can do to help ourselves are ESSENTIAL in overcoming follicular lymphoma. Information alone is not enough.

Content on the site has been developed by a “retired” college dean, a fellow follicular lymphoma survivor diagnosed 27 years ago, currently well and active, the lymphoma now completely resolved.

Survivors never need to feel powerless or alone. As lymphoma patients ourselves, we understand.

Take heart…for the first time ever, proactive follicular lymphoma survivors can take an active role in helping themselves overcome this disorder that until now has been regarded as “incurable”.

 

Times have changed…for the better.

 

The good news is that follicular lymphoma CAN be beaten. YES, it IS possible to put it behind you, enabling you to go on to lead a fully active, healthy life. Never lose sight of that vision.

But, as one would expect, a successful long-term outcome won’t be achieved by limiting one’s approach to past procedures alone.

New research into genetics*, and epigenetics**, is the breakthrough making a huge difference.

So what is the essence of this new research?

At LymphomaSurvival.com, the latest research on follicular lymphoma is matched to lifestyle factors that survivors can apply in everyday living to optimize expression of genes regulating the lymphoma process.

Lifestyle factors have now been proven to significantly influence gene expression.

Corrective gene expression, whether before or after treatment, is vital in achieving long-term 20++ year survival with follicular lymphoma, while being healthy and active at the same time.

Our plan, developed over several years, is known as the “Four Pillar Gene Remediation Strategies (4P-GRS) Program”. Full details are in Article #3. See below.

Being directly involved in one’s own personal recovery can provide a special kind of “hope” never before possible. If you are a proactive survivor ready to help yourself overcome follicular lymphoma, the program here will complement your initiative with the latest scientific research.

 

* Inspired by the recently released multimillion dollar Roadmap Epigenomics Project

** Epigenetics“the new revolution and evolution in modern medicine” from The Gene Therapy Plan-Taking Control of Your Genetic Destiny with Diet and Lifestyle by Dr. Mitchell L. Gaynor, MD, Medical Oncologist based on 25 years of practice.

 

*****

 This site offers the following features:

  Access to our copyright, time-tested “Four Pillar Gene Remediation Strategies (4P-GRS) Program” with key information on diet, nutrition, exercise, sleep, stress management and vitamin D optimization. This program, unlike any other, is geared specifically to follicular lymphoma and other indolent lymphomas. It is deemed essential in reversing follicular lymphoma while remaining well and fully active.

  12 articles written in plain English

  Monthly newsletters summarizing the latest research

  Information on conventional treatments

  A virtual library with over 2500 reference pages (See our Topic Index)

  An exclusive discussion board

  Prompt email support

  Phone consultation

 *****

This international resource community was created 15 years ago. It now serves over 2000 members worldwide. It is supported exclusively by fellow lymphoma survivors and caregivers. No one is denied. A complimentary article, Overview of Follicular Lymphoma is provided.

 *****

Recent Popular Newsletter Items:

Vitamin D Follicular Lymphoma Study by Experts May 2015

Caution re Eight or More CT Scans Plus PET May 2015

Strategies to Stay Healthy While on Maintenance Rituximab March 2015

Follicular Lymphoma Transformation…Important Updates Feb. 2015

Follicular Lymphoma Survival Indicator (Latest Research) …Jan. 2015

How Stress is Associated with Follicular Lymphoma …Dec. 2014

End of Rituximab Maintenance for Low Tumor Burden Follicular Lymphoma” (by a prominent lymphoma expert) …Nov. 2014

Twenty+ Strategic Errors in Managing Follicular Lymphoma (ongoing)

*****

Have a Question? A diagnosis of follicular lymphoma, generally still considered incurable, is a major shock in one’s life. As survivors ourselves, don’t we know it! This site has been set up to provide all the help we can. We don’t provide medical advice but we’re happy to offer guidance on a question you may have. Please feel free to email us using the address at the bottom of this page. Type QUESTION in the subject line. You will usually receive a reply within a day.


 To register for membership now, please click on  Registration

 

The June 2015 newsletter as been posted to the site with the following topics:

Photo by Svet: “Iris of Distinctive Beauty”

Introduction

1. The Development and Resolution of Follicular Lymphoma

2. Repairing Mutations? Inheritance? New Grading System?

3. Why is Sleep So Important in Overcoming Follicular Lymphoma?

4. Twenty+ Strategic Errors in Managing Follicular Lymphoma (Number 12 this Month)

5. Twelve Unhealthy “Health” Foods to Avoid (Number 6 this Month)

6. Cancer Recurrence is Our Greatest Fear

7. Correction in Stated Radiation from Combined CT and PET

8. Ginger When Taking Chemo? Professional Commentary

9. Two Gems One Golden

 

About This Site and Its Community of Members Worldwide

 

This is the most prominent survivor-managed website in the world devoted exclusively to follicular lymphoma.

In general, we support an integrative (see bottom of this page for definition) approach to managing follicular lymphoma, meaning the best treatments when and if needed, combined with  the best in scientifically-based natural strategies to hold the lymphoma in check.

For those not requiring treatment, we suggest a conservative approach.  During this time, which we refer to as dynamic observation, the survivor applies the latest scientifically-based, natural, gene remediation strategies (see the next section) to hold the lymphoma in check. During this period of dynamic observation, many survivors are able to achieve natural regression of their lymphoma.

Our coverage on follicular lymphoma is extensive and up-to-date. It is a virtual library with over 2500 pages of material, more than in any book. The breadth and depth of coverage can be seen on our Topic Index page.

Our monthly newsletters go back over 11 years as can be seen on the Articles and Newsletters page. The 12 basic articles are updated on a regular basis.

We do not provide medical advice. Instead, we help with “forward guidance” to assist members when consulting with their doctors.

Numerous expressions of satisfaction and gratitude are received, a few of which are listed on the What the Members Say page.

The site is committed to balanced objectivity. There is no advertising on the site, nor are there products to sell. It is supported 100% by its membership.

We have several members with types of lymphoma other than follicular, including CLL, marginal zone, mantle cell, T-cell and aggressive (diffuse) lymphomas. Most of the material on this site will be helpful for survivors in these groups.

There are several doctors in our membership, both as patients and caregivers. People come from all walks of life, with a variety of backgrounds.

Members may wish to gain encouragement and information from those with personal experience on our discussion board.

To review additional features on the site, please see the Highlights section below.

 

What Will Be Gained From This Site?

 

Follicular lymphoma is generally regarded as incurable.

However, our “full service” features listed above will provide survivors with the very best chance possible to overcome the disorder, not only holding it in remission for an extended period, but in many cases reversing it.

To help in understanding the complexity of follicular lymphoma, especially for newly diagnosed patients, we are pleased to offer a complimentary 40+ page article, Overview of Follicular Lymphoma to help guide survivors and at the same time validate the quality of our work.

["I requested your free article before I signed up. It has been the most beneficial information I can find. I cannot tell you how thankful I am that you have taken the time to research and to actually make this information available to other people with lymphoma"...Sandy]

For information on our phone consultation service click on the Phone Consultation  page.

 

As Survivors, Who are We?

 

Follicular lymphoma survivors are NOT TYPICAL cancer patients. That’s because follicular lymphoma is not a typical malignancy. Follicular lymphoma cells share many similarities to normal cells. Despite that “advantage”, follicular lymphoma demands special understanding and management for optimal long-term success.

We need excellent/experienced lymphoma doctors who take a long-term perspective toward keeping us healthy, AND we need to know what we can do to help ourselves attain and stay in the “thrive zone” for many years. In short…we need BOTH.

 

Is it REALLY Possible for a Follicular Lymphoma Survivor to Help Him or Herself?

 

Yes, it sure is.

“Life is not over” if you get follicular lymphoma. The prognosis is better than many first think. Most people have had it unknowingly for many years. Living a long, full, active life unaffected by follicular lymphoma IS possible.

Most follicular lymphoma patients sense that cancer is somehow connected to gene malfunction. And that’s correct. Genes regulate everything.

But many follicular lymphoma patients are incorrect in assuming that there’s not much that can be done about changing the way their genes interact with each other.

Here we describe how select lifestyle strategies can alter and correct gene expression through what is known as epigenetics. This remarkable new approach, that follicular lymphoma patients can proceed with on their own, is based on the latest scientific data from the leading research institutions. As of 2015, epigenetics is one of the most active areas in follicular lymphoma research.

 

 

Highlights

 

Many of our members contact us to say that our monthly newsletters are an invaluable source of information (and inspiration!). Here are a few of our most popular items from the past five years:

 

40 “Must Know” Things Learned After 22 Years (Especially Important for Those Newly Diagnosed)  (July 2010)

OK Doc, Why Did I Get Follicular Lymphoma? (November 2014)

Updating What We Know About Spontaneous (Natural) Regression (February 2014)

End of Rituximab Maintenance for Low–Tumor Burden Follicular Lymphoma (November 2014)

Purify My Lymph Fluid! (May 2014)

The Daily Double…Maybe the Most Potent Strategy Yet (August 2013)

Barriers to Achieving Optimal Vitamin D (August 2013)

I’ve Relapsed! Now What? (August 2013)

Why Nodes Grow and Why They Shrink (March 2013)

Grateful for 25 Years Since Diagnosis…the Key Strategic Factors (July 2013)

 

*****

 

We are confident you will find the information and support here beneficial in managing your follicular lymphoma for long-term success. You are invited to join our group as outlined in the Registration page, and receive the sample article Overview of Follicular Lymphoma.

Happy, Healthy and Ready to Help,

Robert G. Miller  

About me

Robert@LymphomaSurvival.com

May 28, 2015

Strive >> Survive >> Thrive

There is Life After Lymphoma…Lots of It

*****
Integrative medicine emphasizes the combination of both conventional treatments and scientifically-based natural approaches to address the biological, psychological, social and spiritual aspects of health and illness. In addition, this website emphasizes respect for the human capacity for healing and the importance of the relationship between the practitioner and the patient.

*****

Disclaimer

This website is intended as a sharing of information and data based on the research and personal experiences of the author. It is NOT intended to replace or be a substitute for professional consultation with a physician or other health care provider. For treatment decisions, consult your doctor or health care provider. The author cannot be held responsible for any adverse effects, results or consequences resulting from the use or application of the information on any page of this site.