Lymphoma Survival
Follicular lymphoma info linking latest research on epigenetics to lifestyle. Vitamin D, exercise, sleep, stress, nutrition, diet. Est. global comm. 16 yrs.

 

By  survivors  for  survivors,  applying  new  discoveries  to  produce  results

 

Site Overview

 

The purpose of this site is to provide survivors of follicular lymphoma with up-to date information, coupled with an action plan based in the latest science, leading to long-term 20++ years of healthy, active survival.

This is not an “alternative medicine” site. Nor is the content restricted to coverage of conventional treatments. What makes this site unique is that it takes BOTH these approaches and weaves them together.

Conventional treatments are important. (We have the latest data and user experiences). As things now stand, most survivors require treatment at some point. Conventional treatments, however (new or old), are unable to correct faulty gene expression driving the lymphoma in the first place. That’s why follicular lymphoma remains incurable.

Fortunately, it is now apparent that gene remediation IS possible by adopting carefully selected lifestyle strategies derived from the latest science into what REALLY makes cancer tick at the fundamental, biological level.

Combining the best strategies for treatment when/if needed along with the best lifestyle strategies offers the BEST chance of “winning the follicular lymphoma challenge”.

Realistic hope is at hand. Proactive survivors can start right now to help themselves with a plan that will build confidence (with healthy vitality) long into the future.

Diagnosed with lymphoma at any point, and if you are not ready to “depart”, come live your dream with us.

 

For 2016 –>

“A  rapidly  shifting  landscape  is  unfolding  in  follicular  and  other  lymphomas.  Opportunities  for  personal  initiative  have  arrived.  Better  outcomes  are  already  apparent.  We  look  forward  to  helping  lymphoma  survivors  reach  their  full  potential  for  long-term  success.”

Best in Health from the team at LymphomaSurvival.com

 February 6, 2016

 

Who We Are

 

Content on this site has been developed by a “retired” college dean, a fellow follicular lymphoma survivor diagnosed over 27 years ago, currently well and fully active, the lymphoma now completely resolved. For details see  Article 12 My Personal History with Follicular Lymphoma 0216 .

Our job is to research and evaluate the latest developments. We then communicate trustworthy, unbiased information to our members in a way they can relate to and implement.

Survivors never need to feel powerless or alone. We’re here to help. As lymphoma patients ourselves, we understand.

 

 New Research 2016…What Follicular Lymphoma Survivors Need to Know

 

The real excitement in cancer research nowadays is in genetics. At first that sounds grim, like there’s nothing that can be done. But really it’s the opposite of that. As survivors of follicular lymphoma, this new research represents a huge breakthrough for us. Finally we have an opportunity to significantly extend survival time through personal choices we can make ourselves.

It is now recognized that mutations in the DNA of certain genes predispose one to getting a certain cancer (or any serious disease). But, mutations are only a small part of the total picture.

The breakthrough in knowledge is that our genes are not “fixed” in the functions they perform. As TIME magazine reports “Genes are NOT our Destiny”. Gene signaling can be dimmed down or brightened up in response to things going on in our lives. Amazing! See below.

Research now shows that it is the EXPRESSION level of numerous genes…some of which are our normal genes…that is the MOST IMPORTANT factor of all, more so than mutations.

Gene expression, both before and after diagnosis, is regulated by lifestyle, environmental exposure and possible infection in the body. ** 

Our Follicular Lymphoma Flowchart shows graphically how these factors come together to influence the expression of genes driving follicular lymphoma andmost important…how details in our 4P-GRS program (see below) can possibly reverse the disorder.

In balance, we understand that these new developments require a different way of looking at things…that it takes  time to accept and sink-in, especially when survivors are thinking primarily about treatments.

However, opportunities await. Take Heart…for the first time ever, proactive survivors can take an active role in helping themselves overcome follicular lymphoma..

** Inspired by the recently released multimillion dollar Roadmap Epigenomics Project


 What We Offer

 

  Access to our copyright, time-tested Four Pillar Gene Remediation Strategies (4P-GRS) Program with information on diet, nutrition, exercise, sleep, stress management and vitamin D optimization. This program, unlike any other, developed over many years, is geared specifically to follicular lymphoma and other indolent lymphomas. Being effective both before and after treatment, it is deemed essential in leading to extended clinical remission, possibly reversing or even resolving follicular lymphoma in some cases. While following these strategies, the survivor is able to remain well and active. (Sometimes the caregiver benefits too!)

  12 articles to help understand the confusing nature of follicular lymphoma, written in plain English.

  Monthly newsletters going back over 10 years summarizing the latest research, treatments, developments and perspectives on follicular lymphoma.

  A virtual library with over 2500 reference pages (See our Topic Index).

  A discussion board for members covering lifestyle and treatment matters, moderated to ensure productive, supportive dialogue.

  Prompt email support.

  Phone consultation.

 

This international resource community was created over 15 years ago. To ensure unbiased objectivity, free of advertising, it is fully independent, supported 100% by our members.

 

February 2016 Newsletter

 

Photo by Svet: “Rainbow in Paradise”

Introduction

1. Follicular Lymphoma–NO DIFFERENCES in Overall Survival between Watchful Waiting and Chemoimmunotherapy or Rituximab Monotherapy (January 2016 Trial Data)

2. Two Friends and One Enemy

3. Retinoids. Red Palm Oil. Vitamins A & E. Liver

4. Poor Sleep Linked to Dietary Fat and Sugar

5. Overeating

 

Latest News

 

[The FAQ page (button on the left) has just been updated. Check out the content for easy to understand information important in planning for extended survival time with follicular lymphoma].

–> Gene EZH2, frequently mutated or incorrectly expressed with follicular lymphoma, plays a critical role in determining response to treatment and long-term survival. We CAN do something practical about it starting right now.

–> The epigenome (see our Follicular Lymphoma Flow Chart) is now declared by researchers to be a “pivotal hallmark” of lymphoma. Survivors can take advantage of this new knowledge through their direct participation starting now.

–> New drugs ibrutinib ( Imbruvica ) and idelalisib ( Zydelig ) in ongoing review. What we need to know.

 

Recent Popular Newsletter Items

 

Why Did I Get Lymphoma? What Are My Chances Now?…November 2015

Follicular Lymphoma: Focus on Food…October 2015

Relapsed After Bendamustine? Now What? New Options…October 2015

Why is Sleep So Important in Overcoming Follicular Lymphoma? June 2015

Vitamin D Follicular Lymphoma Study by Experts May 2015

Strategies to Stay Healthy While on Maintenance Rituximab March 2015

Follicular Lymphoma Transformation…Important Updates Feb. 2015

Follicular Lymphoma Survival Indicator (Latest Research) …Jan. 2015

How Stress is Associated with Follicular Lymphoma …Dec. 2014

End of Rituximab Maintenance for Low Tumor Burden Follicular Lymphoma (by a prominent lymphoma expert) …Nov. 2014

 

Recent Feedback from our Members

 

I   just   wanted   to   respond   to   your   comment   about   “things  going  well.”   Indeed   they  are!   I’m   practicing   the   4   Pillars   faithfully   (and   I   LOVE   the   daily  double)   and   after   retiring   from   24   years   at   the   university,   finally   sleeping   much   better.  I   still   maintain   a   private   practice   4   days  a  week   and   now   wonder  how   I   did   both   jobs   as   long   as   I   did.

I   see   Dr. K   once   a   year   and   he   does   not   even   ask   for   the   LDH   test   now!  He   asked   me, “What   are   you    doing?”  and   I   told   him   of   the   Lymphoma  Survival   network   and   how   all   the   good   work   you   have   done,   Robert,  is   helping   so   many   people.

We   are   all   eternally   grateful   to   you  (and   your   team)  and   the   wonderful   information  and  support   you   have   provided   to   all   of   us,  for   all   these   years.  LET’S  KEEP   GOING   STRONG! …  Kate,   Washington

+++

Additional feedback each month over the years can be seen on our What the Members Say page.

 

To Register for Membership Now, Please Click on  Registration

 

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 Additional Details About Our Site

 

This is the most prominent survivor-managed website in the world devoted exclusively to follicular lymphoma.

In general, we support an integrative (see bottom of this page for definition) approach to managing follicular lymphoma, meaning the best treatments when and if needed, combined with  the best in scientifically-based natural strategies to hold the lymphoma in check.

For those not requiring treatment, we suggest a conservative approach.  During this time, which we refer to as dynamic observation, the survivor applies the latest scientifically-based, natural, gene remediation strategies (see the next section) to hold the lymphoma in check. During this period of dynamic observation, many survivors are able to achieve natural regression of their lymphoma.

Our coverage on follicular lymphoma is extensive and up-to-date. It is a virtual library with over 2500 pages of material, more than in any book. The breadth and depth of coverage can be seen on our Topic Index page.

Our monthly newsletters go back over 11 years as can be seen on the Articles and Newsletters page. The 12 basic articles are updated on a regular basis.

We do not provide medical advice. Instead, we help with forward guidance to assist members when consulting with their doctors.

Numerous expressions of satisfaction and gratitude are received, a few of which are listed on the What the Members Say page.

We have several members with types of lymphoma other than follicular, including CLL, marginal zone, mantle cell, T-cell and aggressive (diffuse) lymphomas. Most of the material on this site will be helpful for survivors in these groups.

There are several doctors in our membership, both as patients and caregivers. People come from all walks of life, with a variety of backgrounds.

Members may wish to gain encouragement and information from those with personal experience on our discussion board.

For information on our phone consultation service click on the Phone Consultation  page.

 

Serving the Needs of Follicular Lymphoma Survivors

 

People are different; often very different when it comes to deciding on how to approach a diagnosis of cancer. It is even common for a patient and his or her caregiver to disagree fundamentally on many things.

We have designed this site both for people who are interested in conventional treatments and for those interested in natural approaches. Many of our members want to explore a combination of options.

In addition, follicular lymphoma survivors are not typical cancer patients. That’s because follicular lymphoma is not a typical malignancy. We need excellent/experienced lymphoma doctors who take a long-term perspective toward keeping us healthy, AND we need to know what we can do to help ourselves live better longer.

 

What Will Be Gained From Membership?

 

Follicular lymphoma is generally regarded as incurable.

However, our “full service” features listed above will provide survivors with the very best chance possible to overcome the disorder, not only holding it in remission for an extended period, but in many cases reversing it.

 

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Thank you for visiting LymphomaSurvival.com  We hope you found it informative and inspirational. A truly positive change is taking place in managing follicular lymphoma. You are invited to join our group as outlined in the Registration page.

Best in Health from the team at LymphomaSurvival.com,

Robert G. Miller  

About me

Robert@LymphomaSurvival.com

Strive >> Survive >> Thrive

There is Life After Lymphoma…Lots of It

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Integrative medicine emphasizes the combination of both conventional treatments and scientifically-based natural approaches to address the biological, psychological, social and spiritual aspects of health and illness. In addition, this website emphasizes respect for the human capacity for healing and the importance of the relationship between the practitioner and the patient.

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Disclaimer

This website is intended as a sharing of information and data based on the research and personal experiences of the author. It is NOT intended to replace or be a substitute for professional consultation with a physician or other health care provider. For treatment decisions, consult your doctor or health care provider. The author cannot be held responsible for any adverse effects, results or consequences resulting from the use or application of the information on any page of this site.