Follicular Lymphoma Survival … Comments of the Month
I want to thank you for the report and more importantly for your undaunting contribution over the many years in helping us to understand Follicular Lymphoma and for condensing volumes of peer reviewed research into frank discussion on ways in which we can all improve our survival time. Your legacy will not be forgotten…Rob (Thorburn)
Thank you so much for all of the wisdom you share on LymphomaSurvival. I am almost nine years out from my diagnosis date and blessed to say I am very healthy. Your site has not only provided current information and strategies, but much needed emotional support as well. Just this past month, I shared your site with a newly diagnosed guy. He was still in the confused, fearful state right after diagnosis and your site was just what he needed…Rebecca, Louisiana
You and I had a phone consultation this past August. During our conversation you made me feel a million times better about the prospect and what the treatment could do for me. I had R-B, took the hot baths, walked, and followed the nutritional suggestions in Articles 8 and 9. A week ago I met with my doctor to get the results of my after treatment PET scan. I had a complete response to the treatments. YAY!!!!!! Nothing lit up– no signs of active disease. I just want to thank you (and your team) and tell you the good news…Tina, Nevada
I was diagnosed in 2005, took R-CVP in 2006 and have been in remission ever since. I’m sure the chemo helped but I think it is the lifestyle choices that have given me enduring remission. Last summer was my last checkup!
Thank you for all your service to everyone… Joan, BC
Thanks for all the good work…Michael, Florida
Thank you for this life-saving website. My journey with lymphoma continues. I find your words and wisdom extremely helpful…Victoria, New York
Glad to see that you continue to thrive and are able to keep your valuable site going for lymphoma survivors around the world. (For me), 12 years and still no treatment…Scott, Tennessee
Your info on epigenetics and the 4 pillars has been my guiding path since diagnosis. I feel physically, mentally, and spiritually better than ever, and empowered to move forward. Thank you from the bottom of my heart for all that the you and the other “founding contributors” do to keep us aware of research and the evolution of epigenetic principles and treatment options…Nancy
I’m doing well. Still no treatment 5 years post-diagnosis…Debra, Washington
I just got back from my checkup. My doctor said comeback in 6 months. Still no treatments after a year and a half following your strategy!…Allan, Michigan
…Love being a member and following all the latest info you bring us with such care – it’s been eleven years since I joined! Tracey, Australia
Thanks again for all your efforts. I’m in my 8th year of remission so all is well. I appreciate all of the information….Alan, Ontario
Glad to report that I am going on 3rd year of watch and wait and I had near golf ball lump in neck that led to detection. Now that lump is not detectable by feel. I believe it has been the double dailies and in general your basic advice including vitamin D, a mild addiction to yogurt and raspberries and a wonderful border collie to walk many miles with. Thank you…Thurston, Massachusetts
It has been about two years since my R-B treatment. I am doing very well, with more energy and no palpable growth of nodes. Thank you for your service to so many patients. Your portal has been a great source of reassurance for so many people, including myself…Chari, California
Thank you for all you do, Robert. My life is better because of you…Cheryl
Having been diagnosed with NHFL 3 years ago, each year there has been a dramatic decrease in enlarged lymph nodes thanks to God and you and your program. I am so thankful for you and your diligent ministry of sharing such important information. May God bless all of you with this very needed work!…Mary, Tennessee
I feel like the information (on maintenance rituximab) you made so freely available helped me dodge a bullet! Today I am well with no symptoms. Thank you for all your hard work, it’s so appreciated…Karen, U.K.
Thank you…All the information you share with us, is so helpful. I am so grateful that I found your website and subscribe to your newsletter…Karen, Ontario
It is so reassuring to see your regular email arrive and know that you are ‘on the case’ of new research and continually adjusting and updating your regimen and knowledge base. I recommend your site to lots of cancer sufferers apart for Lymphoma people – just to get such a good overview of epigenetics and inflammation and lifestyle guidance. It would be good for everyone…Harrison, Australia
Thank you for your open heart, uplifting spirit, and inquiring mind and for being here for all of us on our journey of healing…Suzette, California
Many thanks for your words of encouragement – you’ve shone a ray of light into a dark corner of our lives…Martin, Scotland
It’s been 17 years out for me since being diagnosed and I must say that your newsletters have played a significant role in helping achieve my goal of beating this disorder…Becca
Thank you so much for your very informative and quick response. Once again your purpose to help others learn about all aspects of this disease is so helpful and admirable on your part…Terri, Texas
My husband is a family physician, I’m an RN and we love your site. Thanks for all the work you’ve done…Lisa
Another trouble-free year has passed. I walk two miles every morning and two miles every evening. I take a vitamin D and cod liver oil supplement and raise most of my own food – veggies, chicken, meat and eggs. No processed food. I use an infrared sauna three times a week to improve my circulation. I’m starting year 11 since diagnosis…had three rounds of chemo before starting to use your website…Edward, Idaho.
Last year we moved to a small farm near Canberra where I grow our own organic fruit and veggies, we have stunning fresh eggs from our four hens and my three llamas keep me calm and serene (most of the time!). I love meeting people at the farmers market in Canberra and am hoping to develop our farm and share some permaculture principles with others. I’ve been enjoying learning all about it. I still work in Sydney every few weeks which I adore. I am so lucky to be able to have a work life balance that allows me to be happy and stay healthy. I’m living my dream. I’ve recently being listening to Tara Brach’s talks online. I find her wisdom about self-compassion so helpful…Alison, Australia
I’m looking forward to another year of your incredibly supportive newsletters which provide such a sense of security through your informative up-to-date research and self-help strategies. We are so lucky to have you…Jean, Tasmania
Thank you for sharing all your great info…Jean, Colorado
Thanks for such a great site. My wife and I find it very useful and it is
a great way to keep up with what is happening…Tom
WOW, 28+ years – what an accomplishment! You truly are an inspiration to the rest of us. Thank you also for your wonderful newsletters and articles. They have informed and helped me tremendously. Please never stop them…Mary Jon, Ontario.
Thanks for the wonderful compilation of information! You’ve really done a nice job, and organized things in a thoughtful manner…Carrie, Oklahoma
Thanks Robert…for your continuing outstanding work in providing us much-needed information in an understandable form. I am indeed doing well, with much credit I believe to practicing the ‘pillars’ – so well in fact that my oncologist has put me on an annual check-in basis rather than the 6 month turnaround…Jack, Alberta
Thanks, Robert for everything. (My husband) will be 9 years without treatment in Feb 2017, so far, so good. Much thanks to your site which guided us in our first days, and still today…Ann, Georgia
Still on long-term survival (11 years since diagnosis and counting), thanks to your continuing support with your website. Diane, Ontario
I thank you for all you do to inform us with the most up-to-date information. After 6 years with you, I am as strong as ever. I follow the Four Pillars and feel great. I have avoided any chemo or radiation. I have staved off the transformation stage for now. My health is my number one priority! All my best…Paul
Thank you for the newsletters and all the excellent information you provide. I have been following the 4 Pillars for a year or so and been in total remission for nearly two years now. Thanks again for the great work you do…Keith, London UK.
Thank you for your good wishes. I wish to thank you for all your help and support during 2016. I always find the Newsletters very interesting and informative. Over the years they have always given me hope and supported me in my fight against Lymphoma…Ann, UK
I’m still staying on your guide for avoiding treatment – could not be more grateful for all you do to keep so many of us alive to enjoy life…Carolyn, Ohio.
You have been a lifesaver for me over the 12 or so years that I have been a member…Sheila, British Columbia
With gratitude for your ongoing work and support…Angela, Ontario
I’m now 9 years past diagnosis with no treatment and doing great!…Michael
THANK YOU for all you continue to do to support those of us who have the great fortune of surviving and thriving. Your service continues to be instrumental to my sense of wellbeing. I am filled with gratitude. Your work matters to so many…Jo, Massachusetts
What a simple decision! Should I support a group who is working every day to find ways to improve my health and longevity or not? It is such an easy decision when the group and leader does such an exceptional job. My sincere thanks to you and your team…Bob, Massachusetts
I am a 14 year survivor after being given a mere 7 years to live. I live my life in much the same way you do. I find a great deal of inspiration in your story. Your selfless dedication to the Lymphoma Survival newsletter speaks volumes to your character as a human…Ron, Texas
I am so excited about this (the Facebook posting re “Our NORMAL Cells Rule”). I always have to read a few times to absorb everything but it all makes so much sense! And thank you again for your wonderful website – it’s what I look forward to reading every day. To be informed is key to survival!..Joani, Massachusetts
We can’t thank you enough for your support and wisdom. Always are 1st source of info and inspiration in dealing with the roller coaster ride of my husband’s lymphoma…Alex
I count already 9 challenging years behind me with a lot of support from your activities…Amiram
I am fortunate to be in full remission and enjoying a healthy and happy life. I look forward to the informative newsletters and try my best to put your recommendations into practice. You are doing a commendable job and I am sure I join a band of supporters who appreciate your dedication and work…Jodi, England
You’ve helped me immeasurably in the last 8 years since diagnosed and I just wanted to say thank you for that. You inspire me every month and then some. Again, *thank you*…Mark
My friends know who I’m talking about when I quote “my friend Robert!” I would be lost if I didn’t have all of your information to guide me. My nodes have shrunk in the 3 years since I was diagnosed due to following much of your program. I cannot thank you enough…Mary
Thank you very, very much for all of your wisdom and insight to my many e-mails with questions over the past several weeks. I will be re-reading all of your newsletters and articles to ensure nothing is overlooked. Thank YOU for doing this for fNHL…Kathleen, New York
The tremendous amount of work that you put into the website and publications is truly exceptional. The useful, relevant and up-to-date information you provide is appreciated even though you may not always hear it from members like me. Over the last 6 years (it has been 6 years already!), I always turn to the research and guidance you provide when I have a question or issue…Rod, Nunavut
Thanks for another year of timely publishing, keeping us both (and many others!) healthy for hopefully many years to come! …Ben. New Jersey
With gratitude for another healthy year thanks to you pointing me in the right direction two years ago. Continued good health to you and all of us for 2017! …Gerdette, Ireland
Many thanks again for this very empowering site. I am seeing success with steady natural regression. The fear has been replaced by truly joyful times and the 4 pillars are a way of life now…Bob, Connecticut
Thank you for your email. The newsletter I receive every month during the last 3 years makes me feel you are a close friend. The support you are providing for me and others trying to survive this illness is indeed formidable. It’s a long and lonely journey to fight lymphoma. Your Four Pillar strategy is most effective and sensible to layman like us. Words cannot show my appreciation enough for your wonderful work…Wilson
Thank you so much for your informative newsletters. I read them immediately once they are posted…Christine, Nova Scotia
Thank you for your website, newsletter and sharing your research. So valuable!…Kathy
Now a five year survivor thanks mainly to your site…Linda
You provide such dedicated, comprehensive support for Lymphoma Survivors…Gray
I regret not being financially able to send money for your excellent newsletter renewal as it has been such a comfort to me during 10 years of my lymphoma journey. I have learned and practiced so much of the natural alternatives and am sure they are helping me. I look forward each month to receiving it and all the latest news on cancer and I am going to miss this information.
I am praying for you and your staff as you continue your work that is giving so much comfort and hope to so many. My sincere thanks to you and your staff…Virginia
Hi Virginia: Thanks for your very nice note. My staff and I really appreciate your comments. We are very pleased to extend your membership free for another year. We trust you are doing well. Take Care and all the Best, Robert
Thank you for your web site. I find it very helpful and thoroughly researched. I was diagnosed grade 3a in 2011 with widely disseminated disease with nodes in my neck, chest, abdomen and groin. I elected for no treatment and followed many of your recommendations. At the present time not only has there been no progression but actually regression. I want you to know how much I appreciate your information. I am a physician and reading your site has given me the most information that I have found anywhere…Frank
Thank you again Robert for your informative website. I continue to remain in remission (almost 6 years now). Blessings to you! …DeAnne
You’ve been of great encouragement and help with J’s diagnosis in 2013…Angelina, North Carolina
Lymphoma Survival has given me GREAT advice and HOPE…Anne
Thanks for all you do for all of us…Wayne, Pennsylvania
Thank you so much for all the work you do in helping us who have fNHL, I was diagnosed with fNHL on 2004 and the newsletter has been such a blessing in my life…Robert, Michigan.
I can’t thank you enough for all of your help, not just for me but for all of the people that you have helped throughout the years. What you do is more than a service. It provides hope and direction for people that have been given what can be the worse news of their life…Joe, Michigan
Your cancer research on natural prevention overlaps what I am reading, but your newsletter is the only place that puts everything together…Richard
I have recently sent two follicular lymphoma friends to your website. I enjoy your newsletter and my oncologist at Markey Cancer center is “impressed” with my layman’s knowledge of this disease. Thank you! …Jane, Kentucky
I just wanted to thank you again for speaking with me last Friday. You helped me to really understand the important details of the 4 pillars program and why. In addition you helped me be able to accept the treatment that I will be starting next month. And most of all you eased my anxiety and gave me hope for the next chapter and thriving with this nasty distraction called lymphoma…Tina, Nevada
Thanks for all your efforts which are very much appreciated by me here in Mexico and I am sure by many around the world…Henry
The information you share is priceless!..Jay
I feel I owe you and this incredible site more than money can possibly acknowledge. I have been ‘FL’ free for 8 yrs now but still look forward to updates each month as much as I ever did…Nanette
Keep doing this amazing work that seems to be the only valuable information available that gives a plan and some hope to live with FL. I value more the info I get from you than any other. Thumbs up!…Pascal, Quebec
I really appreciate the information that you provide on follicular lymphoma. I was diagnosed in 2009 and have never understood the disease. This site is so much help to me and I am feeling better than I have in 7 years. Again thanks to the team that provides this marvelous information…Carrie
5 years after diagnosis needing no treatment with positive attitude thanks to your encouraging site, my daughter just completed her 1st half-marathon! Very proud of her! ..Dawn, Australia
Thanks for your continued leadership…Jim, Japan
Thank you for helping with your fantastic website…Sharon, UK
I send our gratitude! Because of this website’s clear and well-researched information, my sister had the courage to reject the advice of a nationally recognized lymphoma expert in 2006. She followed up with several doctors in the Tulsa area and found one who advised her according to your information. All her tests are now clear!…Marsha, Oklahoma
I am glad my little contribution helps. I hope to be able to contribute for many more years so that someone somewhere who has just been diagnosed will benefit. Thank you. Seng Geah, Malaysia
We so appreciate all the work you have done to give lymphoma survivors so many tools with which to actively address their condition…Tim, California
Thank you and your dedicated group for doing all you do. It is a unique service that is truly needed. I wouldn’t have believed it until my diagnosis because I just couldn’t appreciate the emotions and needs generated by it. Your organization fills those needs and soothes those emotions…John, Pennsylvania.
Yup! Doing great. Over 2 years now and no treatments needed. No symptoms. Bloodwork great. Got another sprint triathalon planned for next month…Julie
Thanks so much for all you do. It gives us hope and the education we need…Tom, Pennsylvania
I continue to be indebted to you for your supportive and informative newsletters, resources and updates. With sincere gratitude and appreciation…Peter, New York
I am a physician (MD) recently diagnosed with follicular lymphoma grade 2 stage IV and just finished my second R-Bendamustine treatment. I am following the recommendation of my oncologist as well as reading and following your writings and recommendations. Your 28 years of competent work researching the topic and treatments and integrating the information is apparent. To me your information not only seems credible, it also shows the tremendous work and time you have put into it not only to find the best and most credible information for yourself, but also tremendous work sharing it with others. The purpose of this email is only to thank you for all you have done and let you know that it has helped me…Dave
I am so grateful that I found you and take your advice offered in each monthly newsletter. Yes, I’m doing very well. I just got the results of my annual scan (I convinced them to do an MRI instead of a CT scan due to the radiation risk over time), and the only place I have enlarged nodes is in the abdomen, and they haven’t grown and are very small. So I’ve gone two years now since my diagnosis, and I haven’t needed treatment, and everything has shrunk since the first scan. I believe it’s all due to following the Four Pillar philosophy. I really believe that I was sleep deprived, which brought it on in the first place. I decided to retire and now get exercise and sun every day, along with good sleep. Thank you again!!..Jeanne
I’ve been away for a few years, generally ignoring my lymphoma and following the basic nutrition, sleep, and vit-D recommendations (while trying to squeeze in 3-4 workouts per week. It’s worked fairly well – no nodes visible and my doc sees me as a break in his day every 6 months. Thanks to you for that! I’m still healthy, just wanted to reconnect and see what’s up with treatments…Attilio, Ontario.
I really appreciate your continued efforts in putting out great information on behalf of our battles! Now seven years in remission and doing better than ever…Phil, Bermuda
Thank you for another wonderful newsletter. I don’t know how you do it. I assure you that I eagerly look forward to reading it every month. YOU KEEP US ALL ALIVE…Elke, Maryland
Thanks for a great website…Barbara, Oklahoma
We always are ready to renew our Lymphoma Survival membership to continue receiving the outstanding and well-researched newsletter you so generously provide to help all of us survivors keep abreast of the latest information…L&T, Texas
Another June and another year of healthy membership! I continue to be grateful beyond words for your diligent research, brilliant insights, and caring support. Hope to see you again soon! …Carol
There is so much I have learned from your site, it is immeasurable. I even printed stuff off on the FLIPI m7 newsletter item and gave it to my oncologist in Seattle (where I got a 2nd opinion) and he hadn’t even heard of it. He got real excited reading it. You are helping a lot of people…Lou, Idaho
I am 10 years treatment free since diagnosis with no apparent progression of the lymphoma. I always appreciate your updated research…Judy, Alberta
Thank you again Robert for another year of outstanding contributions to my life, living successfully with NHL. You are a hero…Mark
Once again thank you for all your efforts in providing such great information…Alan, Ontario.
Thank you Robert for your continual insight and options…Mike, Illinois
You are doing a fantastic job—keep up the great work!..Joe, M.D., Minnesota
Thanks, as always, to you and your team for keeping us focused and informed…Scott, California
I am so grateful for all the work you do. You are a blessing!..Diana, Wisconsin
What a thoughtful and nuanced assessment of Gazyva. A great read…Kosty
I want to thank you for the wealth of information you have provided for people with lymphoma. In addition to the very useful information, I find it has been a source of inspiration…Victoria, New York.
Keep up the good research and advice. I’ve been following your sensible advice since for the last 10 + years and feel it is the main reason for not relapsing. Thanks and keep the presses rolling…Tom, California
Thank you for the wonderful information. I was diagnosed in 2008. I’m in excellent health, maintaining an active lifestyle skiing, hiking, bike riding gardening and enjoying life…Rebecca, Louisiana
Your newsletter gave me hope when I was at my lowest. I follow all the information you provide religiously. I am doing great and plan on being around for a very long time. Keep up the great work …Anthony
Thanks Robert for this EXCELLENT resource. Mom has been in remission for 5 years and feels great! …Celine
Your newsletter has been invaluable in helping me navigate through the overwhelming amount of information and misinformation that exists for lymphoma patients. I am so grateful…RR
You have been a life saver for so many of us…Sheila, Florida.
Thank you so much for all you do. You give me hope…Marilyn, California
Thank you so much for your work and this website. It’s really helpful and gave me a lot of hope and motivation to pursue my battle. You are a great person…Gina, New Brunswick.
Thank you so much for your continued time and effort in producing the monthly newsletter, in fact the whole website. I look forward to the arrival of the letter and the information it gives me. You and your team are an inspiration to the members. Thank you…Sheila, UK
Thanks so much for all the work that you do every month. You have made such a difference in my life…Ralph
Thank you for dedicating so much to all of us with FL. Just wanted to let you know I appreciate the feeling that you are in my corner, and the fact that you really know our struggle. Thank you for being out ahead, like the Sherpas of Nepal, setting the lines and forging a safe route, with hard work and experience to make the journey a success. Hope you like the analogy, thanks again…Peter, Massachusetts
Just a note to say how helpful this site has been since my diagnosis. I had so much contradicting information until I discovered your site and found it made so much sense based on science, health and my faith…Andrea, Michigan
Thank you to all the team; keeping up with all of the newest research and findings is more of a challenge than ever…Elizabeth, Ireland
Thank you for making your Lymphoma Survival website available. I find it so encouraging especially when I feel as if I’m not doing enough to fight it or that I’m not making much progress. It is 2 years + since I was diagnosed and I have kept well during this period – due I am sure to your research…Elaine, New Zealand
I can never say thank you enough. I received a free membership initially and so greatly appreciated it. I just want to “pay it forward” so someone else who might not be able to afford it can have access to this wealth of information. I am in great health 8 years after diagnosis and still doing “dynamic observation”…Janet
I just want to thank you for the all the work you have done to put together this amazing set of resources. I have learned a huge amount already. I am implementing the 4P-GRS Strategy. I was diagnosed with fNHL just over 2 years ago. I am very fit and healthy. I feel so much happier in myself now that I am in control of my own destiny rather than relying in the medical and pharma world. Best wishes and keep up the great work…Keith, England
Bless you for starting the site. It has saved me from unnecessary treatment and also keeps me on my toes. I do the suggested exercise routine. My doctor tells me that I am doing more for my lymphoma than anything he or my oncologist can do. I follow the other “Four Pillars”. I was diagnosed in 2003. The last four years have been quiet. I credit a large part of that to the info on your site! So thank you and the many working with you…Karen, Arizona
Your monthly newsletters help to keep me up to date with current treatment and survival options and give me hope for the future. Thank you…Ally, Australia
Thanks you for this amazing site, Robert. I found it the same day I was diagnosed. I recall I was so terrified and hurried that I felt unable to set up something as simple as (my) account. Thank you again. I thought everything was lost…Santi, Scotland.
Thank you so much for taking the time to respond with such helpful information. It means a lot to me and I am grateful…Judy
Thank you for your encouragement in your newsletters. When I found your website it made a big difference in my life…Teresita, New York
Thank you so much for your hard work and willingness to help coach others with your knowledge. Shauna…British Columbia
Your website has been a life saver and have shared it with many friends (unfortunately) who are hit by lymphoma. Take care and keep up the inspiring work…Alex
I’m 6 months out from R-GDP and doing great (NED, feeling fantastic) and YOU and your amazing work have had a great deal to do with that. Thank you for everything…Richard, California
You’re more than worth it at twice the price. I often wonder what keeps you at it, given your good health. I’m feeling a little detached from the discussion board as my run of great health continues. Thank you Robert for keeping us on the road to health and happiness, one day at a time. Currently making Valentine’s Dinner for my wonderful husband and our son and his girlfriend. Lovely company after an afternoon of snow shoeing with them. Just a perfect day…Lucy
What a great note Lucy…thanks. And great to hear you’re doing so well, having fun, enjoying life…just the way it should be.
Yeah, as the years go by I do have thoughts about continuing. But I’m fortunate to have a dedicated, competent support team; Judith, to help with the research, editing of our material and administrative work…a BIG job, and Jill to moderate the discussion board…who also does excellent research work. And Svet dedicates her time and talents to take photos for the monthly newsletters.
Equally significant, however, are the regular notes from members like you doing well, often doing far better than would otherwise be expected.
This latest research into epigenetics has changed the whole picture re fNHL management (other cancers too). Nobody else has a program like ours that helps guide survivors with scientifically-based things they can adopt to help themselves.
So that’s what makes it all come together and I’m happy to do it.
Again, thanks Lucy and great to hear you’re doing well.
In December 2005, Denis stated:
“Nowhere else have I found so much pertinent data, information and ideas to
develop my own research on our illness, with the opportunity to discuss and
exchange experiences in a friendly way with someone facing the same
Now, 11 years later, Denis is a 23 year survivor of follicular lymphoma. In January 2016 he follows up on his comment from 2005, stating that:
“I’m proud to be an active member due to the high level of expertise of the newsletters and the website. I’m still feeling well, with no treatment since Nov. 2006. My oncologist doesn’t want to see me before 2017!”
Keep up the excellent work! You saved my health! Thank you…Chris
Your insights have contributed greatly to keep my condition being stable for the last (several) years…Nissan
Many thanks for your sincere and kind wishes. It is through my daughter who works as a nurse that I discovered your wonderful site which is packed full of useful and helpful information. I was diagnosed with stage 4 indolent follicular lymphoma (over two years ago) and at the time it felt like my world had fallen apart, but reading and learning from you have given me a hope to carry on…Michael
Thanks for continuing to provide trustworthy and independent information for nhl patients and survivors – and building such a worthwhile community…Inigo, Australia
Thank you for all of the valuable information that I read each and every month!…Carmen, Missouri
Thank YOU, Robert, for all the good information and encouragement that you give all year long. You have been my linchpin since my lymphoma journey began 2 1/2 years ago. Your dedication to the cause and sharing of info with a personal, easily-understood manner means so much to folks like me…Dianne, Georgia
Your articles and newsletters always give me a boost of hope and positive thoughts. I am a 17 year survivor and still thriving…Elaine, British Columbia
Four Pillars in full force…in less than a year took a node from the size of a golf ball (didn’t get diagnosed until July) and in mid-December I could no longer find it. Best Christmas present I could ask for…Ryley
I wish to thank you for the wonderful effort you put in to help follicular Lymphoma sufferers. Your web site is absolutely invaluable to me. It gives me focus, assurance and hope. I live more healthily and energetically now, primarily because I follow the 4 Pillars strategy. I am the healthiest and fittest I have ever been… Whether I am eventually a long term survivor or not, the support I get from your site is priceless. I love your balanced approach – using natural methods based on research and working hand in hand with the benefits of the medical profession when needed. My appreciation is boundless – so thanks… Mike, Australia.
We truly appreciate all your hard work and efforts to keep the Lymphoma community up to date. I am happy to say that I remain lymphoma free 8 years after treatment…Louise
I just cannot imagine what having FL would be like without you and your passion, Jill and her dedication and the overall Lymphoma Survival program. I have never considered this fight as fight between me and FL. It always has seemed that since day one when I signed up that there was an army of fighters along side of me. Do I know any of them personally… No… But somehow I feel stronger knowing they are fighting their battles with me, that you and your team really do care, and that long term survival means lifestyle change. Your passion, dedication and knowledge empower me and give me strength. So THANK YOU…. To you and your team!!!…Bud
I believe this is my 10th year as a member of your website. It has certainly come in handy over these years. I hope to be a member for another 10 years and beyond. Keep up the good work!…Diane, Ontario
Thanks very much for your personal response and support. I look forward to reading the upcoming newsletter. It is comforting knowing there are people like you out there putting forth such a selfless effort to help the rest of us. Please accept my sincere thanks and appreciation…Stephen
I’m doing very well. Your website enabled me to identify my sleep deprivation as a potential cause of my lymphoma, and now I’m committed to the 4 Pillar approach. My cat scans show no progression, and I’m optimistic that over time it may be gone – although I read somewhere that it’s not realistic for at least 5 years. Thank you for the great information – you probably saved my life!..Jeanne
My sincere thanks for your wonderful work which has kept me, and I am sure many many others going, facing whatever came my way with determination and optimism…Fabia
Thank you for another year of providing this fabulous lymphoma information. It’s year number 7 since diagnosis for me and I can’t believe how quickly the time passes by when one feels so well…Margaret, Alberta
It must be gratifying for you to see that you were right about so many conclusions that you reached from the research, long before they were accepted by the larger scientific and medical community. It would be difficult to overstate how beneficial your hard work has been for me…Kendall
Your up-to-date information and insight into the rapid changes into the science of lymphoma are a lifeline to us all. I have celebrated my 8th anniversary since my diagnosis with no treatment of any kind and am feeling fine…Cheryl
Thank you Robert! You have been so helpful. I have been on watch and wait since November 2004. No treatments!!!!!! I follow many of your 4 pillars. Thank you for all the research you do and share with all of us!!!!…Krystyna, Ontario
Thank you for all of the careful and thoughtful research over the years. It has been exceptionally valuable to me and my health…Beth
I was diagnosed with fNHL a few weeks ago. My doctor has suggested “watch and wait”.
I like “dynamic observation” and have been reading through a lot of what you have written. What strikes me is how practical, clear and supported the information is – I can apply it NOW – even before I understand all the mechanisms behind it. Thanks for helping others make their way through this. I am happy to help support other people who may not be able to subscribe…Diana, Washington
Just want to say thanks for the work you are doing. I’ve been doing this dance with lymphoma for 14 years now. What you’ve put together has given me the feeling that, finally, I am now leading that dance…Bob
My wife`s scan report states that 2 of her 3 affected lymph nodes had decreased by about 50% post treatment. But there was NO TREATMENT! She was following your Four Pillar strategies. The hematologist said she had never seen this in her 17 years of practice…Bill, Alberta
Thank you Robert for everything you do!!! Every year when I happily renew my membership, I tear up and remember how lost I was nine years ago after being diagnosed and before I found your website. I really credit you for helping me stay alive – you gave me the knowledge and the tools I needed. Thank you again from the bottom of my heart – Here’s to another amazing year of happiness and HEALTH…Brooke
Your dedication to this cause, and the many people who rely on your guidance, is something to behold! I’m sure you’re why I have been in remission for over eight years :)…Lucy
Thanks for continuing to send me your excellent newsletter these past years as it has been such a comfort and help to me. I sincerely appreciate you and your excellent staff for the effort and time put in to gather all the information for helping your members each month…Virginia, Texas
Thank you Robert for everything you and this site have done for me. It continues to be my life line after seven years. I have yet to need treatment and I credit it all to you! Thank you again…Linda
Thank you and your staff for providing us with a wealth of information on lymphoma and diseases in general. I was diagnosed in 2008 and have not had any (conventional) treatment…Wayne, Pennsylvania
It’s been a long time since I have showed any signs of having lymphoma. Everything changed 100% for the better within 2 months of me finding your website back in 2007…Judith
To use the term when reading a book, “I haven’t been able to put it down”! Your website is incredibly awesome, there is so much valuable information that it would probably take me months to read it all, and still I would go back over and over again to refresh the material…James
I am currently showing no signs of this disease and hoping to stay this way for many years to come…Sheila, New Hampshire
Once again, thank you for giving us free access to your website for the first year. But I feel that the information that you have provided for us is so extremely valuable, that at this time I need to keep the promise I made earlier, so I am enclosing our registration fee. Thanks again for your generosity and support…James, Florida
The information in your newsletter has made a big difference in my wife’s health! David
I so appreciate the access you give us (email and phone consultation) to your knowledge and experience! You say that it’s important for patients to assemble their A-Team for their “journey”, and I just want you to know that I consider you to be a most knowledgeable and the most objective member on mine!…Dave, Florida
Our oncologist is amazed at how clear and up-to-date you are…Angelina, North Carolina
Thank you so much for this support site you have developed and maintain. I cannot express how helpful it has been for me. You have given me hope and guidance and far more information than I receive from my doctors. The amount of work you do to stay on top of this is tremendous. I am so grateful for this resource…Peter, New York
Thank you Robert for all your hard work and keeping us all positive. I am still following the four pillar health processes (mostly) and it has been 3.5 years now and still no medical intervention and my lumps have reduced in size some disappearing altogether…Gaye
I just wanted to thank you for all the great work you do. The information from the newsletters has been very important for my health…five year survival in July…Debbie, Florida
Thank you Robert for everything you and this site have done for me. It continues to be my life line after seven years. I have yet to need treatment and I credit it all to you! Thank you again…Linda
Thank you for all your hard work and information about lymphoma. I am doing well 10 years (after diagnosis)…Pam, Illinois
I am Amalia from Greece and I was diagnosed with follicular lymphoma in July. I was desperate in finding a long time survivor, till I found your site and cried from happiness. I would like to be a member. I am out of job for some years, things are very difficult here. I would appreciate if you could include me in your company. (You bet we can Amalia, happy to help and all the Best)
Thank you for the most comprehensive NHFL information site available. You and your staff’s continued updating of research combined with suggestions for thriving continue to amaze me…Craig, Nebraska
Thank you for sharing and doing all the work you do. I find your site extremely informative and useful….Peter, New Jersey
I am 8 years in remission and feeling fine. Thank you so much for the wonderful work you do, it is greatly appreciated!…Sylvia
10 years this summer for me (all’s well)! …Mary Jean, Ohio
Continued thanks. You are providing such a valuable service. I am so grateful…August marks 8 years…Craig, Oregon
Thank you so much for all you do for our group’s shared experiences. Your steady, reliable information and assurance uplifts beyond words…Suzanne, Georgia
Such fascinating information. I am so so grateful to have it. It was exactly what I was looking for. Thank you….Julie
I am happy to support the mission. It is a great web site for content and the quality of thought and writing. I couldn’t be happier that you are now cancer free but I hope this won’t dampen your enthusiasm for continuing your work. You have the rare ability to take complicated medical jargon and make it understandable to non-MDs. You would be very, very difficult to replace…John, Pennsylvania
Your information is invaluable. Thank you…Jacquelene
Thank you for your faithful searching for research and writing in easy-to-comprehend language. Your commitment to serve and help others is commendable…Marsha, Tennessee
Your positive approach continues to encourage my daughter who still enjoys spontaneous regression 5 years after diagnosis!…Kim
Thanks for another year of valuable lifesaving information..Letishia
Shortly after (spread of lymphoma) I discovered your web site and have been a regular member since and I thoroughly enjoy the quality of the articles and newsletter…Joe, MD, Minnesota
I am so pleased to have enjoyed another year of good health. Lymphoma Survival remains my touchstone for information and self-care. As time goes by, so much of what you shared “ahead of the curve” in the past is becoming mainstream, accepted understanding. I am grateful for your good and meaningful work, and for the community you have created with this service. Many thanks…David, Massachusetts
I am doing great. I always look forward to my monthly updates. I truly appreciate the sense of calm I gain from reading your site…Julie
Thank you so much to you and your group for running the lymphoma survival website. I honestly don’t know how I would handle this news without it. Each month I look forward to the newsletter. I also appreciate that you make yourself available for phone consultations. It is good to hear your balanced insight…Terry
(My husbands) health is all thanks to your hard work!!…Kristina
LymphomaSurvival has been invaluable to my health and peace of mind; my sincerest gratitude for your work/information…David
I’m doing very well without treatment, 5 years since diagnosis grade 2, stage 3, age now 84. Thanks for info on your website…Richard
I am in year 9 with no treatment and no visible nodal growth…appreciate your research and information…Joan, Alberta
Oh my, I am in my 11th year since I was diagnosed in 2004, with no treatment, even though I was diagnosed with grade 3. I’m still over the moon about still being here on this earth!! In the early days, the future looked bleak, but it hasn’t been, and part of that is due to your work and my learning from your journey and the journey of many others with Follicular Lymphoma in this group. Thank youwith all my heart for your work…Beth
Thanks for all your work and time. I’m going on 12 yrs. of no treatment and no symptoms since diagnosis. I feel great! …Joan
I am a full time ER (emergency room) doc. Still no chemo! I want to tell you how impressed I am with the quality of the info you are publishing in the newsletters. And your personal story is an inspiration to all of us…Joe
This service is most helpful and informative and should be available to as many as possible. I am well with no sign of a recurrence so far after 7 years. I just got back from 4 weeks in the Palm Springs area so I am fit and ready to face the summer…Alan
Thank you for all the wonderful work you do, so helpful and you are so encouraging!…Carolyn, Wales
We continue to greatly value you and your team’s diligence in distilling the most up-to-date research for our consideration and incorporation into a balanced lifestyle. Elizabeth…Ireland
Thank you for www.LymphomaSurvival.com It is a lifeline. Clear, helpful, focused, both deep and broad. It has made a tremendous difference to me in my medical journey…Liz, Illinois
You do an AMAZING job of support for all of us…Mark
Thanks so much for all you do for us NHL people. I devour your articles and your info has been so valuable. Diagnosed at 70, I am on the 20+ year plan. Many thanks…Mary, Tennessee
Nothing I could do could match your amazing commitment to this cause. It will be eight years this May since my diagnosis and I have been well all of that time. I continue to enjoy a very active life. Truthfully I would not be as healthy or as happy without this diagnosis. It was mentally tough in the beginning but I have put into practice so much that I wouldn’t even have known about without your guidance (and your wonderful team)… My friends and family are also the beneficiaries of healthy lifestyle suggestions…Lucy, Ontario.
I would like to express my thanks and appreciation for all you do for us members. Living with such a diagnosis would have been extremely difficult without your support and information you provide on this website. I feel grateful for discovering Lymphoma Survival and I wish you continual health and happiness. Warm Regards, Antonia, Florida.
My sister has subscribed to your site for me for years and after receipt of so much benefit from the detailed information – and the sense of control and hope that it imparts, I have decided to sign up. Many many thanks for such terrific and positive information…Nicky
I find the newsletter to be so helpful and informative. Thank you for all your work and research…Jane, Michigan
I am studying your info each day and definitely following the Four Pillars. My son who is a geriatric doctor came for a visit last week. He was very impressed with your site. Thanks a bunch for being there for all of us when we need you…Carolyn, Ohio. PS: Love the beautiful pictures that accompany newsletters.
(From my last CT scan) I am starting to see some results thanks to your help (26% shrinkage). You have been the only positive and informational resource that I had in all this time and I want to thank you again. Is it the 4 Pillars strategy results that I am beginning to see? I have applied all of them with rigor and I hope that this is what I am reaping after sowing….Pascal, Quebec
I should be thanking you for all your guidance and support over the course of the last few years. You infused hope when I was presented with a very hopeless prognosis. I was 42 at the time and was told to go home and prepare. We now joke that we vehemently believe that the oncologist meant dinner. I was diagnosed at stage IV and my case went before a board. They were split (regarding what I should do). Well, almost four years later, I remain in remission. My last scan proved that all the tumours have regressed significantly. I remain a mystery to my oncology team and I LOVE IT! So with this, I send my heartfelt thanks…Lili
I know how much I appreciated stumbling upon your website not long after I was diagnosed with NHFL, and finding other folks who were in my boat seeking answers, comfort, hope, current research, and someone willing to help. You provided that, and continue to push forward in life. Thank you from the bottom of my heart…Todd
Your work and commitment to the health of others is an inspiration to me. I cannot thank you enough for what your research and recommendations have meant to my health…Jen
Thank YOU Robert for your amazing body of research and anecdotal information. Truly a bright light in the tunnel for so many of us on this journey!…Jim
Thank you for all your continued efforts to keep us on top of what’s new. It is so helpful on keeping everyone on track for a better outcome…Brenda, British Columbia
Just wanted to let you know how grateful my family is to have found your site. My adult son was just diagnosed and the site has been invaluable. From facts to encouragement, including your own inspiring story, we feel blessed to have found this site. My son feels positive about the future, and has a plan of action, resources, and fellow travelers on this new path. Thank from the bottom of my heart…Julia
Thank you from the bottom of my heart for providing this amazing website and your wonderful articles and newsletters. They’ve given me so much hope, something my oncologist hesitated to do. I am 78 have had FNHL thruout my body [by PET scan and a nodule biopsy] which was treated initially with Rituxan alone with no effect other than nausea, depression and weakness; then with Bendamustine and Rituxan for 4 months which was discontinued when I developed pneumonia…Two months later with no treatment, my CT and blood work showed no evidence of the disease!…Dani
(My partner) and I are thrilled with his most recent checkup and thought we would share the great news. Our checkup 6 months ago showed a 50% reduction in the node in his groin while all other nodes had resolved. Now, fast forward another 6 months and the node has completely resolved. Our oncologist was thrilled with his blood work and couldn’t believe the node had further receded back to normal size. He will be seen in another 6 months for follow up and is feeling fabulous. As mentioned he is very diligent with following the Four Pillar approach and is committed to the lifestyle changes.
We want to thank you so much for all of your hard work and hope you know the impact your site has on people’s lives, especially when a young family like ourselves were faced with such an obstacle.
Thank you! Thank you! Thank you!…Tina
We really appreciate all that you do for people like me. I’m a 10 year survivor, 62 years old, with only one serious bout with this quiet devil inside my body. Thanks so much for what you do. Keep up the good work…Jim
Thanks for all your hard work, time and dedication…Rob, Ontario
Thank you for your guidance and information. It means sooo much to me. You are inspiring and you give me hope. Marilyn, California.
Your site and the many articles have helped me keep my mind in the game and hopefully on track. I think your site is great and recommend it whenever I talk with others…Ralph.
Your unwavering long-term commitment to providing us with the best information is what makes it all come together…Randa
I am so glad the website remains independent – which I think is of utmost importance. You have given so much to me and to us all, with your diligent research, analyses, and spirited encouragement. Your work is just brilliant and is simply priceless – and I thank you for all that you are doing, Robert. I am still amazed that I had the good fortune to discover you with your Lymphoma site…Naomi, British Columbia.
Words cannot properly describe all the benefits Cheryl and I receive from your newsletters and email accessibility. Being diagnosed over 9 years ago and completing one chemo regimen I can truly say I have never felt better. M and C…New York